Bond of friendship stronger with Lou Gehrig diagnosis
By Susan Wood
When John Winkelman wakes up Christmas morning, the 1977 South Tahoe High School graduate and his class buddies will have the comfort of knowing they share the greatest gift of all – an everlasting friendship that long sustains the presence of the person.
Two years into it, Winkelman is dying of Amyotrophic lateral sclerosis (ALS) — better known as Lou Gehrig’s disease. The debilitating illness that attacks the spinal cord and nerve cells of one out of every 100,000 people has taken away his ability to talk. But that setback has not deterred him from communicating with his friends who gather to share good times, laughs and understanding.
“It really is a celebration when we get together,” STHS grad Lynn Corey of Sacramento said.
The friends are spread out with Winkelman living in Los Altos. The Tahoe bond remains strong. The 51-year-old returns to the South Shore for the STHS homecoming every year.
This fall 65 people showed up to play bocce ball. The sport has turned into a mainstay of activity. And why wouldn’t it? Winkelman was a first-class athlete in high school, playing football. He even placed 18th in downhill ski racing at the Lake Placid Winter Games in 1980.
“I remember thinking that this is a man who was always an athlete, skied in the Olympics, played hockey on three different teams. The idea this athletic person was going to be reduced to an amuscular person was devastating,” said Corey, who drops what she’s doing whenever the group calls.
People who know Winkelman may contribute to a website called the Caring Bridge to share thoughts on their friend
Corey stressed how when she and a handful of friends from STHS meet up, there’s lots of laughing – sometimes over crazy antics when they were young. She shared classes with Winkleman.
She recalled how Winkelman was supportive, like a brother, when she took her military father’s Jeep out for a joy ride with him.
After high school, time escaped until they reunited and ended up at Steamers Bar for a drink. She was troubled by watching him struggle with swallowing, a symptom of the disease. She learned about his prognosis about 10 months ago. From then on, the friends have met at an accelerated pace.
“I just didn’t want the next time I see him to be at his funeral,” she said.
Rob Miller, another friend and fellow grade, agrees. For Miller, the experience has hit close to home. His father died of ALS in 1981, so he witnessed firsthand the wrath of the disease. Most patients die between three to five years after diagnosis, but one-fifth of them live beyond that mark.
“It’s hard because I know what lies ahead for him. As a group, we try to do all we can,” he said.
Since Winkelman wants his home remodeled and is unable to perform the work, Miller is bringing a contractor over to help.
“I knew John would be needing help,” he said.
The men played football together in high school, but Miller was adamant that they’re closer now.
“His attitude is strong, and he still has his wit,” Miller said.
It’s as though Winkelman is helping his friends discover what’s important in life. And along the way, Winkelman has had his own epiphanies about the true meaning of success and living a life as a good person. The husband and father of two admits to being “overwhelmed” by the show of support from friends.
“Having a good reliable friend is like oxygen to me. I have to have it. All fires start small in your fireplace. With some work, you get it to where you want it, then enjoy it. I am now enjoying the warmth of my good, reliable friends,” he said via email. “It feels great. May the STHS Viking spirit live on!”
He said he doesn’t want to be remembered as a good athlete, but much more.
“I was gifted to be good at whatever sport I played. How I want to be remembered is summed up in a poem by Ralph Waldo Emerson. It has nothing to do with trophies, medals or places. It measures success,” he said.
The poem called “Success” reads:
“To laugh often and love much; to win the respect of intelligent persons and the affection of children; to earn the approbation of honest critics and to endure the betrayal of false friends; to appreciate beauty; to find the best in others; to give of one’s self; to leave the world a bit better, whether by a healthy child, a garden patch, or a redeemed social condition; to have played and laughed with enthusiasm and sung with exultation; to know that even one life has breathed easier because you have lived – this is to have succeeded.”
(Click on photos to enlarge.)
I was told a few months back what John was going through, I was a few years older than John but do remember him and his family. To see how his class friends are supporting him says a lot for what John says is Viking spirit. We had a small school and there was a lot of support during those times. John I hope you have a wonderful holiday and you have a lot of people who care, God Bless
I grew up with the Winkelmans (John’s older brother Karl and I were classmates and good buddies at STHS) and John is a great guy with a great attitude. Not only is John a great athlete, he is a great person, a great friend, and a great father. His positive outlook on life is not a quality that developed since his diagnosis, it is a quality he has always possesed. This community has a long history of looking out for its’ own, and John’s classmates embody that Viking spirit. God bless you John, from the Cocking Family.
John and I have been friends for 25 years, unfortunately… I wasn’t privileged to meet John in high school. I met him in 1985, introduced by his older brother Karl. I was a novice skier at the time and John taught me with love, humor, gentle encouragement, and a new set of skis and boots to become much more than an athlete… I thought I was a positive person, I’ve been told that I can find gold lining in a pile of doggie poop, but John has always been so much more… I don’t think I have ever heard a negative utterance from him in all the years I have known him. Through the years, there have been moments of sadness, including sharing with me two years ago this coming January, of his probable ALS diagnosis. Yet, even in the sadness, there has always been a positive attitude, a bright smile, the love of, and for life, his loyalty to family and friends, his strength of faith, and his fighting courage and spirit. As a psychotherapist, I have just one rule ‘no quitting’, I’ve never had to say those words to John and I don’t believe I ever will. I can truly say that I have breathed easier in my life, because John’s love and friendship has touched mine. Godspeed John, Love, Mie Lynn Tsuchimoto & Wyatt Kaikane Tsuchimoto-Cole
I am privileged to be a part of the STHS gang and “Wink’s Team”. What a great group of people and a great group of friends.
John,you have always been a great guy, respected by all that know you. you are always a gentelman, polite and respects others. John I can still remember you going by our house, flying down the hill, doing a hand stand on a scateboard,sure scared the hell out of me.
The best to you John
Don Frier
John and his family lived around the corner from our family in Jr High and Sr High. It was great to have John as a neighbor, classmate and teammate. It’s been many years since I have seen him, but he lives in “my house” and will do so forever.
Stay busy and keep on being you!
Peace brother…