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Metastatic breast cancer needs more attention


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By Kelly Shanahan

Oct. 13 is Metastatic Breast Cancer Awareness Day. It is important to recognize the elephant in the pink room that is October: metastatic breast cancer, cancer that spreads outside the breasts, affects 155,000 Americans, killing 40,000 of us every year, yet it only receives 2 percent of breast cancer research dollars.

Metastatic breast cancer is rarely talked about, even during October, despite the fact that almost a third of women with early stage breast cancer develop metastases –- even 10, 20, 30 years later.

Kelly Shanahan

Kelly Shanahan

Once diagnosed with metastatic disease, average life expectancy is only two to three years. We are never out of treatment. Our cancer is not curable, at least not in 2014.

Recently, I attended two conferences for women with breast cancer, one exclusively for women with metastatic, or stage four, disease. At these conferences I found great hope, meeting women who have lived full and productive lives for up to 20 years after being diagnosed with metastatic breast cancer.

However, without more money being spent studying metastatic breast cancer, we cannot make that 20-year survival the norm instead of the exception.

We don’t even know why some breast cancers spread, and why other women with early stage disease are treated and never have a problem again. That is basic biologic research. We don’t have standard treatments for metastatic breast cancer; put 10 women with 10 different oncologists in a room and you’ll find 10 different treatments. That is basic clinical pharmaceutical research. But without more funding, that research cannot be done.

One of the problems with “Pinktober” is that all the cheery pink ribbons imply that breast cancer is no big deal if we are just aware and get our mammograms. That complacency, in turn, removes the sense of urgency to obtain more funding for more research, and also keeps us from addressing how to prevent breast cancer in the first place.

So many of those pink products contain chemicals that actually increase the risk of breast cancer, like BPA in hard plastic bottles and phthalates in cosmetics. And sugary, processed foods wrapped in pink also are counterproductive in preventing breast cancer. So this Oct. 13, I ask you not to pity me and the 155,000 other Americans living with metastatic breast cancer, but rather to support us as we fight for our lives. Support us as we advocate for more information, more funding. Support us as we live.

Kelly Shanahan is a 20-year resident of South Lake Tahoe and the owner of Emerald Bay Center for Women’s Health. She has been living with metastatic breast cancer for 11 months. A mom, a wife, an active member of our community, she continues to work part time as a gynecologist even as she undergoes chemotherapy.

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Comments

Comments (2)
  1. M Elie Alyeshmerni says - Posted: October 13, 2014

    Dear Kelly.
    Of Course you’re right. We need to spent enough money to find a solution to this scourge on our communities.

    You may take heart from an article by Jay Gould who was diagnosed to live eight months yet lived 20 years interesting.

    He found that this amount of time was the median which is a very poor indicator of how each individual person may be affected.
    Stay strong and hopeful and fight like hell. Good luck to you.

  2. Irish Wahini says - Posted: October 14, 2014

    Kelly,
    http://www.mbcalliance.org — see the Executive Summary. I would be happy to connect you to one of the founders of this organization, who has been a professional advocate for years, and sits on the FDA advisory board. I ave been a BC Research Advocate for 15 years with UCSF… maybe you can contact me personally through the LT NEWS if you are interested in making some great connections for BC research.